Yesterday was a day to meet with all Emily's doctors. We started with the Neurologist who went over her MRI and EEG with us. He didn't really have any new information for us. It is entirely a waiting game. There is obvious damage to certain parts of her brain and the EEG showed that there is still "opportunity" for seizures. He would not pinpoint anything! It is too early to speculate anything except that there will be some problems. Right now she is having trouble with the reflexes on half of her body. We will only learn what other problems there are as she reaches or doesn't reach certain milestones in her life. She will have many different therapists working with her, plus mom and dad, so we will do the best we can to make her as mobile as she can be.
After he left, we talked to the Doctor in charge of her case. The best news that we got from her is that there is nothing stopping her from coming home except the G-tube. She informed us of different agencies that are ready and willing to work with us to get her the care she needs to live the best life she can.
As she was leaving, the surgeon walked in. We were able to discuss the G-tube and what that entails and all the fun stuff that goes with it. They are also going to do a procedure that will tie some of her stomach around her esophagus to stop reflux from occurring. God willing, she will have the surgery tomorrow. We are unsure of a time, but we know tomorrow. THEN, depending on her recovery and how quickly we learn how to use the tube...she can come home! We are anticipating early next week! This is the one thing that we have been hoping and waiting for all along. She can finally have consistent care from people who know and love her.
As you can imagine, we are gearing up for sleepless nights and stressful days; but we don't have to travel back and forth to the hospital all day long. We know that our schedule will consist of doctor’s visits and therapy, but we will enjoy every minute we get with our little one.
In the past month we have had the blessings of God rain down upon us and there is no way to thank you all. We have had someone lend us a car, many people cook meals for us, an outpouring of gifts given in the form of money and baby essentials and prayers too numerous to count. We never realized how loved we were until this happened. We are more amazed every day at how much people are willing to help us out...even people who don't know us. We know it is all from above, for we can do nothing good on our own accord, but only through the will of the Father.
We ask that you continue to pray for us and little Miss Emily as she has her surgery tomorrow and we prepare to take her home. The struggles for us are really just beginning. We have a lot to learn and look forward to each new challenge as an opportunity to share the love of Christ and give all the glory to God. He has blessed us with this child and we will make her a blessing to Him.
I have attached some of the latest pictures. She has many new outfits that she has to pose in, so mom and dad have been a little picture crazy; as is expected.
One last thing before I go. I graduated from seminary in May and have been unable to find a job in the area that I am searching. I am looking for an administrative position in a church or ministry. I am not gifted at preaching or teaching, although some might think these emails have been a little preachy. I have full confidence that God will provide for us financially in some way, shape or form, but we are unclear how this is going to happen. I am not asking you for a job, but I am asking that you pray specifically that God will guide us to where He needs me to be to serve Him best. He knows where He wants me to be, I just need to find where it is. Pray for wisdom and guidance on my part.
Thanks again for all your prayers and support,
We love you all!!!
Mike
Eph 2:4-7
PS Dawn has been reading the Gospel of John to Emily; how are you doing with that?
No comments:
Post a Comment